On November 13, as part of The Mellowes Center’s Rare Diseases and Rare Cancers Symposium  Rare Storytellers® will bring together two young adults who have lived with Rare Disease since childhood and recently navigated the move to adult care. Register HERE!

Our Mission


Through music, H4H fuels external scientific discoveries in rare disease, educates future physicians, researchers and health care practitioners and unites community for rare disease.


Music and storytelling make us a recognized leader in rare disease advocacy, education, and research.